"The term previvor is a relatively new one, and sources so far haven’t determined a consistent spelling of the word. It may alternately be spelled pre-vivor, or an entirely different word that more closely matches its definition, presurvivor, may be used instead. Previvor tends to refer to those people who are predisposed to certain types of cancer. They glean this knowledge either through direct family history or by finding out they have genes that may be potential cancer indicators. The two largest groups that make up most previvors today are those women at high risk for ovarian cancer, or who have the breast cancer gene."Thanks in part to Rep. Debbie Wasserman Schultz (a previvor/survivor herself) and the efforts of FORCE, awareness for previvors is increasing. This year the week of September 26 - October 2nd was designated National Hereditary Breast and Ovarian Cancer (HBOC) Week; with Wednesday, September 29th being designated as "Previvor Day".
Being a previvor is something I know a little bit about; I am one. I am happy to see that more awareness efforts are being focused on previvors because early diagnosis is key to survivorship not only with breast and ovarian cancer, but with all cancers. I feel very strongly that everyone should know their cancer risk, but I know that many fear repercussions from insurance companies, etc. The efforts such as those being made by FORCE help us all "face our risk" and make educated decisions, with out fear.
See also: What is a "Previvor"? -- msnbc @vodpod http://t.co/0akHbAYKnow your risk!